I know that you have to be patient with yourself during the process of coping to hard situations. For example, when my baby brother was born, he was diagnosed with a very rare disability, and would have a shortened life expancy, to lack of medications, or a cure.
When I went to the hospital, weeks after my baby brother had stayed in the NICU, I was very nervous, because my family knew something wasn’t right. After about seven weeks, the doctors didn’t know what to test him for, so we went home. About three months later, we went to a UCLA hospital check-up, and we saw a genetisist. As we walked in, she stared at my brother, and said, “I know what his disability is.” Me and my mom were very confused. The doctor diagnosed my brother with Hunters Syndrome with just a look. After many more tests and many more months of waiting, it turned out that he was positive for the disability. I was so heartbroken but I was glad that there was hope. There was a treatment called enzyme replacements that he could get through IV every week. The medicine did not cure him, but it kept his body healthy enough so he wouldn’t decline mentally and physically. Without exposure to the medicine, he wouldn't have lived.
All of this was a lot for me to take in, and to understand. It took me a long time to be calm about my family's situation. I felt so upset, and I was always so nervous when I was with my family. After a couple of years, being to the doctors office, and hospitals so much, I was used to everything. I still wasn't fully as mentally happy as I should have been but, after that I realized how much of a blessing he is. He has shown my family so much that a “normal” family would never know. He also has shown me so many life skills that will benefit my future enormously. He continues to bring happiness in my life, and now into my friends lives because the more they get to know him the more they love him.
I learned to live in the movement and to adjust yourself to situations, to have a positive outlook on life. No matter what gets thrown at you, turn it around into something positive.
When I went to the hospital, weeks after my baby brother had stayed in the NICU, I was very nervous, because my family knew something wasn’t right. After about seven weeks, the doctors didn’t know what to test him for, so we went home. About three months later, we went to a UCLA hospital check-up, and we saw a genetisist. As we walked in, she stared at my brother, and said, “I know what his disability is.” Me and my mom were very confused. The doctor diagnosed my brother with Hunters Syndrome with just a look. After many more tests and many more months of waiting, it turned out that he was positive for the disability. I was so heartbroken but I was glad that there was hope. There was a treatment called enzyme replacements that he could get through IV every week. The medicine did not cure him, but it kept his body healthy enough so he wouldn’t decline mentally and physically. Without exposure to the medicine, he wouldn't have lived.
All of this was a lot for me to take in, and to understand. It took me a long time to be calm about my family's situation. I felt so upset, and I was always so nervous when I was with my family. After a couple of years, being to the doctors office, and hospitals so much, I was used to everything. I still wasn't fully as mentally happy as I should have been but, after that I realized how much of a blessing he is. He has shown my family so much that a “normal” family would never know. He also has shown me so many life skills that will benefit my future enormously. He continues to bring happiness in my life, and now into my friends lives because the more they get to know him the more they love him.
I learned to live in the movement and to adjust yourself to situations, to have a positive outlook on life. No matter what gets thrown at you, turn it around into something positive.